Just4Children are fundraising to provide therapies, orthotics aids and other therapy equipment to help improve Evie’s quality of life.
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This is Evie. She is a happy smiley 5 year old from Reigate in Surrey who just loves life!
Evie had a very dramatic start to her life. She was born 10 weeks premature and spent the first 6 weeks of her life in neonatal intensive care in Brighton being treated for respiratory distress, sepsis and necrotising enterocolitis (NEC).
Evie is our little miracle. She is a fighter and pulled through...
As a family we were always worried about how small she was or that she didn't hit those milestones but we were always reassured she would 'catch up'. At age 2 we started to really notice that there was more of an issue and so started a long battle to be heard and to get her the help she needed. We are truly grateful to the NHS for saving her life and for the support we have had so far, but it was a battle.
At age 3 we finally received Evie's diagnosis of periventricular leukomalacia (PVL) and cerebral palsy. Although her ride side is weaker, it is her legs that are most affected.
Evie receives regular physio and wears a leg brace however she needs more. We are raising funds for Just4Children to cover the very expensive costs of private hydrotherapy, conductive education and other therapies. She desperately needs a more comfortable leg brace (which needs changing 1-2 times a year) plus additional equipment to allow us to give her more intensive therapy at home.
All of this will enable Evie to live a more comfortable life, to be able to keep up with her peers at school and to just live life to the fullest.
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